Pippa Stacey
Disabled Writer, Presenter and Communication Consultant
Digital, Media and Publishing
Pippa Stacey is an award-winning writer, presenter and communication consultant based in Yorkshire. Through sharing real and authentic experiences of chronic illness, she has grown a sizeable online community and become a reputable name in the charity sector.
Pippa has a particular interest in inclusive education and employment for people with long-term conditions. Through her work with the charity Astriid she helps connect individuals with meaningful work, advocates for employers to create more inclusive roles and diversify their workforce, and provides bespoke talks and training to organisations about living and working with a chronic illness.
As part of the team at Chronic Illness Inclusion, Pippa is also striving to incorporate energy-limiting conditions into the social model of disability in a meaningful way. She is also part of the marketing and communications team at DecodeME, using her skills and lived experience to champion the world’s biggest (and long-awaited) genetic study into ME/CFS.
Pippa is a published author and loves writing for her blog and social media platforms. She enjoys collaborating with her favourite brands as a disabled influencer and working with digital marketers to craft more inclusive campaigns. Through her online content, she wants to normalise less-visible disabilities and ambulatory wheelchair users living their most fulfilling lives.
In her free time, Pippa enjoys theatre, books, and fundraising. In everything she does, her aim is to make the world more accessible for people with energy-limiting conditions, to remove the stigma, and ensure everybody can live the life they choose.
“I’m so honoured to be part of The Disability Power 100 this year. It’s a pivotal time for people with Energy-Limiting Conditions (ELCs) like my own, and it’s essential that this sizeable community is represented in conversations about equality and disability rights as we move forward. Being able to advocate for people with ELCs and long-term conditions through my work is a privilege, as is being able to campaign for a more inclusive world in my own unique way… mostly from home with a cup of tea in hand!”