Louise Kenward
Writer, artist and psychologist at ZebraPsych (psychology related work)
Media and Publishing
After a twenty-year career as a psychologist, Louise began writing in response to developing chronic illness in 2011. She has since combined the two, writing and speaking for patient and practitioner forums on themes of complex and poorly understood illness. She has particularly worked on developing understanding of the misattribution of psychogenic interpretations of chronic energy limiting conditions such as Myalgic Encephalomylitis (ME/CFS). These illnesses have been poorly addressed in medicine and research, and the historical harmful framing of ME/CFS, a complex neurological disease, as psychological in nature, contributes to continuing experiences of medical trauma for many patients today.
She is currently working with the British Psychological Society (BPS) to address these themes further and is co-chair for the BPS on the Attitudes and Education group, with the Department of Health and Social Care on the implementation process for the NICE guidance for ME/CFS. She advocated discontinuing the use of cognitive behavioural therapy (CBT) and GET (graded exercise therapy) that had long been the treatment protocol for ME/CFS, and which the new NICE guidance has now removed. She continues to write about the harm caused by terms such as medically unexplained symptoms and has forthcoming chapters in psychology and psychotherapy books on these topics.
Louise has also fostered a career in creative writing. Published widely, she co-produced Disturbing the Body (Boudicca, 2021), a collection of women’s speculative non-fiction exploring themes of falling and failing bodies. Louise also secured funding from Arts Council England in 2021 to compile an anthology of nature writing by writers with chronic illness and disability, commissioning work from 23 writers and artists.
Louise established a series of writing workshops as part of this project throughout 2022, exploring connections to nature. Free to access, Louise partnered with literary, nature, and disability organisations to facilitate them. The resultant anthology, Moving Mountains (Footnote, 2023), is the first of its kind, drawing illness and disability firmly into the field of nature writing.
“I’m thrilled to be recognised for the work I’m doing by Disability Power 2023. So much more is needed, but this feels like a very significant shift in making much needed change from the injustice of the past.”
Disability Power 100 2023 profile information has been self-submitted by the profile subject. Shaw Trust understands and respects that disability and impairment descriptors and language use varies from person to person. Shaw Trust assumes no responsibility or liability for any errors or discrepancies in the content of this, or any other, profile page.
More from the Disability Power 100
Dr Shani Dhanda
Dr Shani DhandaDisability Inclusion Specialist, Social Entrepreneur and BroadcasterChair JudgeShani is a multi-award-winning disability inclusion specialist, thought leader, social entrepreneur, and accomplished broadcaster. She's driven change by establishing...
Lee Ellery
Lee ElleryWebsite Accessibility AssessorLee Ellery is from Swansea and has Cerebral Palsy which affects all four limbs and is also visually impaired. None of this stops him doing what he enjoys or working as a user-tester for Shaw Trust Accessibility Services. Using...
Simon Stones
Simone StonesSenior Medical Writer and Patient AdvocateSimon Stones is an Award-Winning Senior Medical Writer and International Patient Advocate. In 2023, he was awarded the inaugural Rising Star Award by the International Society for Medical Publication...