Dr James Cusack

Director of Science, Autistica

At 12 years old James was diagnosed with autism and was told he would struggle to achieve anything academically. Dr James Cusack is now one of the most visible and influential autistic researchers in the world and is Director of Science at Autistica, the UK’s leading autism research charity.

James’s influence spans science, academia, the media and civil society. He is responsible for Austistica’s scientific strategy, grant-making, science communications and relationships with scientific stakeholders. His pioneering approach to research includes advocacy for higher standards across the field, open data, sharing of assets, community-led work and authentic representation of autistic people throughout all projects. His work at Autistica has helped ensure autism is a clinical priority in the NHS for the first time.

James has a degree in psychology, a PhD and undertook post-doctorate before being recognised as an ACEVO rising star. In just three years he has become a global thought leader and has been invited to advise on autism initiatives internationally, putting issues like early death in autism firmly on the map for researchers as large as the US Government.

This year James kickstarted a ground-breaking citizen science project and acted as a lead investigator on the world’s largest autism research grant where he works to build a bridge between the autism communities and researchers.

James says: “Thinking about how Autistica can be as effective as possible as a charity is both a privilege and a fantastic challenge and responsibility. In our work with autistic people, families, policymakers and researchers I am hopeful that we are moving towards a better future for autistic people.”

James is heavily involved in all aspects of the organisation, including media, digital, policy, HR and strategy. He regularly finds time to actively fundraise, as well as making media appearances to raise awareness of autism, campaigning for change, and pushing for more inclusivity and transparency.